I am not ready for April, Autism Awareness Month.
There is a lot of news out there regarding autism. Some I agree with and some I don't agree with.
It's just too much to take in.
Note: Sam Noble: Will you be my advocate for April? I need you to decode my thoughts and feelings and to use your great words and ability to communicate with others for me.
I am a huge fan of deep pressure and weight. Often times, I will carry around a solid copper ball by the name of Quincy.
I have had Quincy for a very long time. I love having weight in one, or both, of my hands. It meets a sensory need for me which I still don't quite understand. He (yes, I have assigned Quincy a gender) is also a great defense if I am walking home alone at night. You do not want to be on the other side of a punch with Quincy in my hand! Luckily, I have never had to use Quincy for that!
Yesterday, I FINALLY was able to make it to the gentle yoga class at the YMCA. I have been trying for over 5 weeks...going downtown, taking the elevator upstairs, getting used to the locker room, looking in the window at the yoga class...and then going home...again and again.
But I FINALLY did it! And, lol, they were randomly filming the class! So, at some point there will be a clip of me in a YMCA "video looping" thingy at their gym.
Ear protectors are a great tool.
I am glad I finally went to the yoga class esterday, but the rest of the day was a HUGE struggle. I almost screamed at several different groups of people in public, because they were making very unpleasant sounds!!
I also attracted a lot of attention to myself with my vocal stimming
I had to wear my ear protectors to keep myself under control.
Because I did something SO
big and new (at least it is for me!) I got a reward! A new sensory toy to carry around!
She's heavy, like Quincy, and very pleasing to carry around. I named her Anabelle, because she looks somewhat like me!
Also, I can hide tiny notes or written wishes inside of her!
What are social stories?A social story is a simple description of an everyday social situation, written from the perspective of the person is it meant to help.
They are mostly written for children, but would never turn away a social story written for me that could help me with an area I am struggling to understand.
Yesterday, it was decided that I needed a social story pertaining to taking care of my jellyfish. it has been a struggle, especially because the company who manufactured and distributed the tank and jellies has misrepresented themselves.Here is the social story my support system and I created:
A social story written for Anabelle Listic, loving guardian and caretaker to Tsukimi, Willow and Smack.
Sometimes my jellyfish are healthy and swim around the tank all day.
Sometimes one or more of my jellyfish will look sad and not move much.
When they look sad I remember to:
Take a deep breath and relax.
Set a timer for 10 minutes before taking action.
Check their water condition.
Change the filter.
Ask for help.
I remember that there will be ups ad downs for jellyfish in any environment and that I am doing an awesome job by researching and gaining the skills to make my jellyfish tank enironment healthy.
So simple and, yet, SO helpful. I gives me the reminder I need to stay calm and remember. Social stories are usual for many different learning and growing situations :-)
I am thankful for many things in life.
Mostly, I am thankful for the wonderful, supportive people I know who help guide me through this stressful and confusing world.
I am mentally exhausted from several very recent stressful changes. Aside from keeping up my blog and maintaining basic daily routines, I haven't done much. Thanks to the supportive people around me I have been eating and keeping as positive as can be expected.
pastel drawing from 2006
I am out of words.